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AML Therapy: Chemo / Transplant ...Herbs



July 2006
-Born with congenital Acute Myeloid Leukemia (AML m5) (four siblings - one match three haplo)
(no marrow or CNS involvment) (isolated to the skin).


July-Nov 2006 - Oncology/BMT at Children's Hospital Wisconsin
-3 rounds of chemo (did not put him in CR)
-spot radiation for two recurrent skin areas (mid November) (pictures: Before, After)
-BMT: busulfan conditioning (no TBI) and a matched sibling transplant.


Dec 2006 - Intensive Care at CHW
-After transplant liver complications (blog: December 10) - CMV Hepatitis, VOD, possible GVHD ,
respiratory failure requiring mechanical ventilation


Jan 2007 - March 2008
-CR for 14 months
-Relapsed April/May (2008) (AML CNS relapse) (leukemic menengitis) (also with 2% marrow involvement)


May 9,2008 - Re-Admitted to Oncology at CHW Milwaukee
-Salvage #1 (high dose ara-C IV - and intrathecal ara-C)
-Refractory disease: Not in CNS remission - 15% marrow blasts


June 9,2008 - Continued Oncology at CHW
-Salvage #2 (Topotecan intrathecal twice per week, 2CDA / idarubicin IV for five days)
-June 20 ended Topotecan - still not in CNS remission (Nucleated:16 Blasts:86%)
-June 27 started Methotrexate intrathecal (Nucleated:62 Blasts: 95%)
-July 18 chronic subdural hygroma detected - July 19 subdural drain put in
-July 18 last Methotrexate intrathecal (Nucleated:1 Blasts:83%)
-July 19 CSF fluid from subdural drain (Nucleated:1 Blasts:83%)
-July 31 Discharged (Palliative care) (Refractory CNS leukemia, Aplastic Marrow)


August '08 - June '09 - Herbal Supplement Treatment (home)
Dates Dosages / Results Comments
-7/22 to 7/26/08 Treating Typhlitus / Ilius / Gut Failure
-8/1 to 10/10/08 Treating CNS leukemia and Marrow Aplasia
-1/23/09 Remission!!!! Herb Therapy Review
-4/9 to 4/21/09 Treating CNS Blasts Plant Synergies
-5/3 to 6/14/09 CNS Treatment/Marrow Prophylaxis Father's Day

CSF Nucleated Cells 5/16 to 9/10/08 (traditional AML chemo ended 7/18) CSF Blast Percentages 5/16 to 9/10/08 (traditional AML chemo ended 7/18)


July '09 - August - CNS Chemo combined with Herbal Supplement Treatment
Dates Dosages / Results Comments
-7/27/09 Herb Dosages Journal
-8/29/09 Dilantin overdosage, Ommaya failure/leak Journal


Sep '09 - Marrow Relapse - Herbal Therapy
Dates Dosages / Results Comments
-9/17/09 Journal


Oct '09 - Intensive Care Complications - Jaymun Passed Away 10/13/09
Dates Dosages / Results Comments
Journal


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