Jaymun's Journey - Fighting Leukemia

Medical Summary

July 2006
-Born with congenital Acute Myeloid Leukemia (m5) (four siblings - one match three haplo)
(no marrow or CNS involvment) (isolated to the skin).

July-Nov 2006 - Oncology at Children's Hospital Wisconsin
-3 rounds of chemo (did not put him in CR)
-spot radiation for two recurrent skin areas (mid November) (pictures: Before, After)
-busulfan conditioning (no TBI) and a matched sibling transplant.

Dec 2006 - Intensive Care at CHW
-After transplant liver complications (December 10) - CMV Hepatitis, VOD, possible GVHD ,
respiratory failure requiring mechanical ventilation

Jan 2007 - March 2008
-CR for 14 months
-Relapsed this April/May (2008) (in his CNS) (leukemic menengitis) (also with 2% marrow involvement)

May 9,2008 - Admitted to Oncology at CHW Milwaukee
-Salvage #1 (high dose ara-C IV - and intrathecal ara-C)
-Refractory disease: Not in CNS remission - 15% marrow blasts

June 9,2008 - Continued Oncology at CHW
-Salvage #2 (Topotecan intrathecal twice per week, 2CDA / idarubicin IV for five days)
-June 20 ended Topotecan - still not in CNS remission (Nucleated:16 Blasts:86%)
-June 27 started Methotrexate intrathecal (Nucleated:62 Blasts: 95%)
-July 18 chronic subdural hygroma detected - July 19 subdural drain put in
-July 18 last Methotrexate intrathecal (Nucleated:1 Blasts:83%)
-July 19 CSF fluid from subdural drain (Nucleated:1 Blasts:83%)
-July 31 Discharged (Palliative care) (Refractory CNS leukemia, Aplastic Marrow)

August 2008 - Herbal Supplement Treatment