A Day At The Beach
8/13/09
Thank you for checking in to see what's new with Jaymun.
He had his MRI on Tuesday and we're going to be discussing the results of that test tomorrow with Jaymun's oncologist.
Everyone is pleasantly surprised with how well Jaymun seems to be doing so far with his treatment.
We'll go into more detail about this tomorrow after our meeting.
We also know that to many people, Jaymun's relapse seems so unexpected and sudden.
People have commented to us about how Jaymun appeared to being doing so well right up until he became sick again.
Dave and I normally don't go around talking about the expectations for his disease because it would only put focus on
worries about future things we have no control over. However, we both know that the type of leukemia Jaymun has doesn't
leave much breathing room for relaxing. With AML, once relapses start they usually keep on repeating.
"Remission" sounds like such a beautiful word when you've been battling for such a long, long time. But all it takes is one little test to send those waves of fear crashing back all over again. It's been three years since Jaymun was first diagnosed at birth and we've been on quite the rollercoaster ride with him.
There's not a single one of us who thinks he hasn't been worth it all.
Sean (with Jaymun in photo above) just said to me last night that he wishes Jaymun didn't have leukemia but that he's still happy he's part of our family. That's a pretty mature way of thinking for a seven year old, if you ask me! It's not just Jaymun who has had to go through this whole experience because his other siblings are affected in many ways by his cancer too. They've had to grow up much faster than I would have liked and I'm so very proud of the way they handle life's curveballs.
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We try to live life knowing that nothing is a guarantee. I have a very sweet, heartwarming post coming in the future
about some ways that our family is trying to make sure that Jaymun's life is always filled to the brim with enjoying all
the little moments.
Just four short weeks ago, we were at the beach playing on a warm summer day. The next morning, Jaymun woke up incredibly sick and we found out that his leukemia was back once more. Please, if you learn nothing else from reading our story, take time to enjoy living... |
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