Update
11-10-06
Jaymun had his third day of
radiation today...the nights and early morning hours are a bit difficult as he
is deprived from his favorite activity, which is eating. I use a combination of
apple juice and Pedialyte for his last 3
hour-before-sedation clear liquid feeding...he likes the taste of it better
than straight Pedialyte, so he drinks a bit more.
Still, I hate having to wake up a sleeping baby to get the one last liquid
feeding into him.
As annoyed as he is with us for making him wait to eat until
he wakes up from radiation, he sure can smile! Dr. Firat,
the radiation oncologist, told me this morning that Jaymun
is their "star patient" right now. I did manage to take some photos
yesterday that might interest people who are wondering what radiation involves.
I'll try to write about his procedure in a few days, for those that are
curious.
When Jaymun's oncologist visited
us today, I asked her the names of his two bacterial infections. One is called staph
COAG negative and the other is enterobacter.
He has to remain on three different antibiotics so the effects of them will
sufficiently cover both infections. It's rare for someone to have two separate
infections in their central lines
(which is where Jaymun receives his IV meds and chemo
and where they draw the blood cultures from), but apparently it does happen
sometimes.
No white counts to report yet... he received a blood transfusion today because
his red count was too low. We are told
he might need to stay here during the entire fourteen days of antibiotics so
they can keep a close watch on him. Originally we were supposed to just be
coming back and forth from home to hospital for radiation, but now he'll be
inpatient the whole time.
