Another CNS Relapse
The past few days have not been good
for Jaymun and now we are back
in the hospital.
Since Wednesday he had been occasionally complaining of "head ouchies" and then vomiting. It has been getting worse.
He had been doing so well
for months. (see video from just this Tuesday
Mid June I relaxed and stopped herbal treatments.
We originally had a diagnostic LP planned for the end of this month.
However ...this Wednesday he started with the headaches and nausea.
Thursday we had a clinic visit and were hoping it was just a touch of the flu.
This morning I took him to the emergency room ...head CT and lumbar puncture.
182 Nucleated Cells, 92% blasts, and something detected on the head CT (chloroma?).
It has been about a month since we finished the last herbal treatement (last dose June 14
...we need to start them back up, and probably also get a few intrathecal chemo doses ...triples (methotrexate, hydrocortisone, and cytarabine) in the next few days.
I feel like I let Jaymun down by lapsing in the herbal treatment for the past month (sorry buddy).
Well... this has our full attention. Hopefully we will be able to complete the job that got interrupted here last summer.
I'm going to get a head start tonight, and if by tomorrow Jaymun shows dramatic clinical improvement, we
may delay the intrathecals. One good thing about being here at the hospital is anti-nausea medicine
) (so I can actually
give him herbal meds without him vomiting them shortly thereafter).
P.S. Say an extra prayer for one of Jaymun's friends - Nadia ...she is where Jaymun was a year ago and needs a miracle.
We came in, and met them in the hall going home.